Showing posts with label pirates. Show all posts
Showing posts with label pirates. Show all posts

Monday, December 12, 2011

So the mermaid says to the frog...



"Do you hop?" And the frog, being agreeable, demonstrates. "hop, hop, hop!"
Good job!" says the mermaid. "Let's do it again!" And the frog, ever accommodating, complies.

For about the last six months, Simon has been using his toys to reenact scenes from favorite TV shows. This was pretty exciting in and of itself -- he was talking, a LOT (I'll take language in any form!), thoroughly entertaining himself, and lately he's added dramatic vocal inflection. The most exciting part, however, was that it  seemed like he was practicing -- getting ready to try playful interaction; to create a 2-sided dialogue of his own.

Over the weekend, I noticed that Simon was playing with toys in a slightly different way. He was talking ABOUT them. Not reciting, not repeating. He was also more specific about what he wanted to play with. When I gave him his pirate captain, he told me he wanted the pirate's friends, too.

Wow, I thought -- that's different. Simon is becoming aware of friendship -- and he likes it! How incredibly amazing, wonderful, miraculous...!!!  I found a few more crew members and Simon sang some pirate songs and I looked on feeling more optimistic than ever. I've been avidly eavesdropping on his playtime utterances ever since, looking for more glimmers of spontaneous social awareness.

My rapt attention was rewarded tonight -- frogs and mermaids have never been more eloquent. There were just a few lines, but they were all Simon's own.

Wednesday, December 29, 2010

Day 2: ¡Ayúdeme



So, today was the "big" day we'd been most dreading -- the initial casting. Getting the cast made was every bit as difficult as I'd imagined it would be. Admittedly, I've had some experience with this, since a cast is required to make AFO's, and we've been through that three times now. Each time there is screaming and crying, a heroic effort by Simon to escape and plead for help (in both English and Spanish thanks to Dora & Diego), matched by my equally stoic effort to soothe him, hold him down, and keep him from maiming the individual working on the cast.

This time it took four adults. Myself and Brian holding onto him, and two therapists working on the arm. It was a big challenge, he's quite strong for a little guy that weighs only 30lbs, and he is quite adept at wiggling out of tight places. Trying to get the cast on correctly was tricky, and then removing it to prep it further was even harder.

Brian and I are both a little surprised by the cast itself. From photos we'd seen of the program, we were expecting a full-on cast in our choice of rainbow color. Apparently, that isn't how it is being done now. What we have is.. interesting. They use a waterproof material to make the cast (which is great), and then they remove it (very confusing for the small child in question), trim off the rough parts and tape up the edges with a waterproof tape, finally  re-inserting the child's limb and securing it with electrical tape (in our choice of rainbow colors). Practically speaking, I understand that the desire is to be able to remove the cast to check the skin and then re-use the same cast, but the result looks like I tried to set Simon's arm myself with paper mache and duct tape.

But, never fear. I'm working on a cosy for it. So far, I've found a Paul Frank pirate-themed knee-high sock I think may work, if I can trim and hem it properly... Heck, maybe this will lead to me opening an Etsy shop full of cast-cosies.

Yes, I am that shallow.

The BIG surprise of today is that Simon has almost immediately started adapting. As soon as he'd recovered himself somewhat therapy began, with a walk up and down stairs while attempting to hold onto a railing, and then pressing elevator buttons (a favorite task on any day). I expected a fair amount of resistance to using the "other" arm, and honestly, with me in the room there were a lot of tears and wanting Mommy to "hold you." However, after I finally accepted that I needed to go and hide (within earshot), and after a few failed attempts at getting the casted side to do anything (and a bit more crying), Simon just went with it. He is really trying to make this work and I am amazed.

But, I should have known. Is there anything like the resilience of a child? Even under the most trying circumstances, they will find a way to be a kid. To be present in the moment. To play, eat goldfish crackers, and press all the buttons on the elevator.

I have so much more to learn from that.